Houston

Okay, so here is a re-cap of our Houston trip.

We went over the 4th of July weekend for a MEG scan. The scan was to see if they could determine if Jack's seizures have a focus point. The reason we are going back down the surgery road is because his seizures were getting worse. The diet has helped a lot, but 5 seizures a week is still way to many.

We started messing with the diet and his meds to see if we could get them to reduce a bit, and they only got worse. He was on a med called Trileptal and he was having about 2 seizures a day. I didn't realize how many he was having until I slept in the same bed with him in Houston. The poor baby!

So we took him off of that med and put him on a different one and we are taking away one that he has been on for 19 months. If you are following all of this, you are doing better than I am! I can hardly keep up anymore. Thankfully the new med we are trying is actually helping. He is in the "honeymoon phase" where he isn't having seizures. When we do find a good med this phase lasts a few weeks to a month or so and then the seizures come back.

Anyways, back to our trip to Houston!

We headed down and ended up on the phone with the hospital for most of the trip trying to get everything set, the arrival time (which changed), and make sure they knew everything about the diet and what he can/can't have. Needless to say I was worried about how things were going to go just by all of the confusion on the phone.

When he wakes us up at 5 am it's all fun and games, but when we wake him up at that time it's the end of the world!


We had the best anesthesiologist ever. He was great with Jack and with us. He took us into the room with the MEG and explained what all was going to happen.


He wanted us there when they put him under and he let me give Jack a nail trimming after he was out, which is the best way to do a toddlers nails! After that he put us in the break room right around the corner from where they were doing the scan. I could stick my head out the door and hear Jack's heart beat from the monitors. He also kept us informed as they were doing things. After the scan was over, we walked with them up to the MRI room where Jack had yet another MRI. We got a text from the doc when it was done so that we could meet them in recovery.


We were there for a total of 9 hours, which made for a very long day, but honestly it was one of the best hospital experiences we've had so far.

That afternoon though, Jack was ready to go go go! We went to the Children's museum and played for a bit. He loved playing with the pretend food.


And I think daddy had just as much fun as Jack did!


The next day we headed down towards Moody Gardens and met some friends at the water park there. Of course our little fish could not have been happier.


We headed home the next day and Jack actually did pretty well in the car. Better then any other trip so far. He screamed a bit, but it wasn't a crying kind of scream. It was a make your eyes bleed and your fillings fall out kind of scream.


And we took a detour on the way home to the farm to visit with family. Jack had some fun with his cousins while we were there.



It was a very long weekend though and I'm glad it's over.

The scan did show that Jack is a surgery candidate. His seizures are coming from his right temporal lobe which is actually a really good thing. Only about a month left before the big day.