Surgery is soon!
I am nervous, excited, and enjoying an adult beverage brought by a friend.
The docs are confident that we have collected enough data, even tough he hasn't had one of his big typical seizures.
They will take us back around 7 and surgery is scheduled for 8. Our neighbors, who we know from our epilepsy support group, had surgery right after Jack last Wednesday and will be doing the same tomorrow too.
Last night Jack was up from midnight to 4 and then woke up at 8 for the day. He didn't nap all day and just finally fell asleep not long ago. I really hope he sleeps all night!
I'm not really sure what else to say.... it's been a very long week and the next few days are going to be rough. We have had so much support and it has been wonderful and really helped us through.
Here are some Seize Hope pictures:
Christy and her dog are Seizing Hope here in Austin!
Here is Jack taking boxes to the post office to ship off to some of his friends!
Port Saint Lucie, FL
Downington, PA
Albequerque, NM
Dallas, TX
Anaheim, CA
Plano, TX
Fort Worth, TX
Leander, TX
And these are just the few that I have pictures of on my computer. They have gone as far as Canada, all over Austin, I know of 4 class rooms here in Texas where these have been handed out and Jack has even gotten many cards from the kids. Total so far 900 bracelets and cards spreading epilepsy awareness have been handed out. I have another 500 (300 adult, 200 youth sizes) arriving on Thursday so if you would like some to help the cause, let me know!
A huge special thanks to some Real Mom's out there who got all of this started and who have spread this nation wide. This has given me something so positive to focus on during a very stressful time. I will forever be thankful.
If you are the praying type, please keep Jack, the surgeon and his team, and our family in your prayers tomorrow. Seize Hope!
No comments:
Post a Comment